Sebrina Harrell is a supermom to 17-year-old John, who has two rare diagnoses - including Skraban-Deardoff Syndrome. Sebrina walks us through how John is impacted and what it means for his daily life. I peppered her with tons of questions, and she gives great insight into managing seizures, handling certain behaviors and overall development. I found it fascinating to hear her discuss John's journey as he gets older and how it impacts the lives of the parents as well.
Please visit SKDEAS.org for more information about Skraban-Deardorff and how you can support our superheroes.