Sebrina Harrell is a supermom to 17-year-old John, who has two rare diagnoses - including Skraban-Deardoff Syndrome. Sebrina walks us through how John is impacted and what it means for his daily life. I peppered her with tons of questions, and she gives great insight into managing seizures, handling certain behaviors and overall development. I found it fascinating to hear her discuss John's journey as he gets older and how it impacts the lives of the parents as well.
skdeas.org
smilesincludedpodcast@gmail.com
Please visit SKDEAS.org for more information about Skraban-Deardorff and how you can support our superheroes.