Smiles Included: Navigating through life with our rare disease superheroes

Sebrina Harrell: A glimpse into the life of a SKDEAS teenager, including managing seizures and impacts on the parents

August 28, 2022 Season 1 Episode 5
Smiles Included: Navigating through life with our rare disease superheroes
Sebrina Harrell: A glimpse into the life of a SKDEAS teenager, including managing seizures and impacts on the parents
Show Notes

Sebrina Harrell is a supermom to 17-year-old John, who has two rare diagnoses - including Skraban-Deardoff Syndrome.  Sebrina walks us through how John is impacted and what it means for his daily life.  I peppered her with tons of questions, and she gives great insight into managing seizures, handling certain behaviors and overall development.   I found it fascinating to hear her discuss John's journey as he gets older and how it impacts the lives of the parents as well.

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Please visit SKDEAS.org for more information about Skraban-Deardorff and how you can support our superheroes.